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Lord Jesus,

I pray for dear Beth,

She is such a sunshine to all who know her and a real joy to her mother. Now she is in tremendous pain and her body is in turmoil., You said to the waves "Be Still"...Please bring Your calm and healing to the body, and mind of this dear one...Give divine wisdom to all associated with Beth's care.

Lord Beth is "The apple of Your eye." Please have mercy and give her relief this day I pray.

In Your Wonderful Name.
Amen.

"Amen" to Jenny's prayer.

My heart aches for Janet and Beth in this situation.

Thank you, dear Jenny.

Dear Janet,

My heart goes out to Beth and you.  I saw an operation on television last night .  It was performed on a neurofibromatosis patient in University Hospital of Chicago.  Dr. McKinnon and his team removed a massive tumour and they saved the young womans life against amazing odds.  The tumour,  was on her spine and had overwhelmed her whole body in fact it looked as if it was part of her body. She was unable to move for the weight of it.

The team moved as one and performed this miracle. They did not give up..even though you could see them tiring during the operation.  They were so concerned to save her life.  Such a wonderful dedicated team, working together as one.   

Afterwards it was strange to see a frail, tiny little body ..The 200lbs tumour had made her look so huge.
Now Lorrie (I think that is the spelling) is able to lead a normal life with her husband and little girl. She looks the picture of health and has just had another scare but it has proved negative.

I do not usually watch operations but I was led to this as I searched for another channel and I was so interested because of "our" Beth.

I know now that there is hope even for the direst condition Janet. I wasn't sure whether to post this, but I decided to as I feel it will bring hope.


                                 "It is no secret what God can do                       
                              What He's done for others, He can do for you."


         I would like to make a dedication of the hymn "It is no secret"     Pat, for Beth...

Love Jenny.

Thank you, Jenny. Beth watched and recorded that operation several years ago, and I have watched the tape. The biggest difference between her case and Beth's is that her tumor, though so terribly massive, was on the outside of her body; while Beth has such complicated problems inside the spinal c a n a l itself.

I know that God can move mountains, and have been trusting Him for Beth's healing since she was four years old.  While it is really hard to keep up my courage at times, I know that I don't have a choice. I MUST continue to hold fast to my faith, for that is our total hope.

In the meantime, the decisions needing to be made are pressing in on every side.  Thanks for your continued prayers.

Beth handled going to church and then to Mark's Eagle ceremony yesterday quite well.  We even stopped by so she could visit her grandma in the care home when we got back to town. But then we practically had to carry her into her house. The ramp she has is much too steep. Things have got to be changed, and soon.

Janet:  I am praying for Beth and for all the family.  Carol

Thank you, Carol, and all who are praying for Beth.  She is still having a lot of pain in her back, but is pretty stoic about it.

We have been working on her place, and also looking for organizations who may be willing to help with the bigger and more expensive projects.  I took her toilet riser over and put it on the toilet for her yesterday; Darrel chopped the big weeds beside the ramp and put poison on them, fixed the porch, and measured the inside doorways and figured out how to widen them.  Mobile homes have pretty narrow doors and hallways, not too good for wheelchairs or walkers.  Darrel will also install an alarm and give her a panic button wrist thing and a necklace so she can call for help instantly if she falls.

Beth's birthday (42nd) is on August 28, and I have requested for as many who would like to, to send her a birthday card.  She has a great sense of humor, so if you like funny cards, those would be fine. ( Any kind you like, sweet or funny or whatever!)  If you want to send one, email or IM me and I will give you the address.  Thanks so much.

Janet - If you emailed me Beth's name and address, I think I could get a card mailed out to her in time for the 28th.

Beth is having more problems in moving her legs.  Yesterday she told me that it is very hard for her to get into bed.  She can get one leg up in the bed, but then has a really hard time getting the other one up.  We are thinking maybe one of those trapeze things to set over her bed would be helpful, then she could hold onto it with one hand and try to move the leg with the other hand.............Please pray for the wisdom of God as we continue to deal with the situation.

Thanks so much.

Janet, I continue to pray for Beth and for you and Darrell as you seek the best solutions to some really tough situations. 

She is trying so hard to be independent.  But, praise God, she is talking to you and telling you her difficulties so you can help her keep her independence. 

Beth, I love you and you are always in my prayers.

Continuing to pray for our Beth, Janet!

Janet - I continue to pray for Beth as well. She is so fortunate to have such loving parents like you and Darrell.  I'm sure she knows that too!

Janet I continue to pray for Beth.  YOu too.   That in all things with this whole situation that God may be glorified as he works through the problems.

There is a book you could get her and let her enjoy reading.  The Dream Giver, by Bruce wilkinson, the author of The Prayer of Jabez.  It is awesome and I am sure she would enjoy it.

May the grace of God be with you both.

Judy,

Cazann, my friend Carol loves this book also., (The Dream Giver)

Janet.
Give Beth my love again today please...and more big {{{Huggies}}}.

Stopping by to say that I am still thinking of you and Beth. 

Carol

PRAISE GOD!!  PRAISE GOD!!  PRAISE GOD!!  PRAISE GOD!![/color]

You may have alread read in NEM the good news about Beth getting help.  The nurse from home health care came out yesterday and evaluated her, filled out a stack of forms, and told her someone will be coming out three times per week to help her, and the nurse will check on her once a week.  Today, someone from physical therapy is coming to evaluate her and get her started on some PT to help her legs.

I feel this is due in large part to the continuing prayers of you dear ones here on CP.  Thank you from the bottom of my heart![/b]

AMEN.........AMEN.......AMEN

To answered prayer.  Finally Beth is getting what she needs

I'm thankful for your assistance, Janet.

Oh Janet - I am so happy for Beth...and what a load off your mind for you as well.

Janet:  Such blessings - it is so good to hear of some lifting of the burden.  Carol

Still praying daily for both of you, Beth and Janet and the rest of the family circle.

Thanks so much, friends.  Beth is having a lot of jaw pain, and can barely open her mouth, so today I am taking her to see a dentist.  I do hope she doesn't have too serious problems in her mouth!  I am glad, too, that I can take her here in town instead of traveling a long way to see a dentist.  Of course, depending on what they find, we still may have to do that.  But I'm believing for the best--I'm the eternal optimist.   

Janet - What a wonderful mother you are to Beth...she is so blessed to have you.  How is her mouth situation today?  What did the dentist have to say?

The dentist says she has early TMJ, and has ordered a splint for her to wear, hoping that will ease the pain.  Very expensive, and he didn't even look in her mouth!  Her teeth need attention, too.

The head nurse of home health came yesterday and was very disturbed when she asked Beth to walk on her walker, and saw how she walked.  (She barely can!)  Her left foot is turning in toward her knee, like a club foot now, and the nurse told her not to use the walker when she is alone, as she is afraid she may fall and break that foot.  Also, the doctor hadn't called her back as promised, so the nurse went to his office and got him on the ball!  Today he called and said Beth's neurologist had okayed some drug which should give her some relief from some of the symptoms.  So I will be picking that up for her tomorrow.  I'm not sure what it is.

Thanks for your interest and concern.  We keep on truckin' and trustin'!

Well, Janet, what else can we do?  I'm really praying for you and Beth, and am so relieved that you have the relief of the home health people and local doctors. 

Janet, Ask the Home Health nurse about a  part time caregiver for Beth. You will need to take a break sometimes. I can't imagine what you are going throught as a mother, watching Beth's disease disable her more and more. You need to have some help.

Oh, Janet...  Love you both.

Janet,  I agree with Marilyn.  You need a break sometimes and the health nurse may have some ideas about someone staying with Beth part time.  The stress you are under is enormous!!   I will be praying 

I agree with the others as well, Janet.  Your trip to Thailand will be just the break you need.