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Beth doesn't feel the expensive week in Texas has helped her, but I am believing for some imporvement in her general health from all the treatments.

She did get notice that her request for a hearing before an Administrative Judge of the Social Security has been received and that she will be notified when the hearing date is set.

Continuing prayers are so appreciated.  This situation seems to drag on so long, but I know God is in control.

Janet and Beth, my prayers continue.

Ruth Ann

Janet, I'm continuing to pray for our Beth.  Keep us posted.  

PRAISE THE LORD!!!Beth got notice today that she is approved for Social Security Disability!!  She doesn't even have to go to a hearing!  I feel as if a massive load has rolled off my shoulders!  Praise God for my friend who decided to go talk to the SS representative in Beth's behalf!  And that that representative went to bat for us and got this accomplished.

Beth is having an endoscopy and a colonoscopy in the morning, so if you could pray for good results from those tests, we will appreciate it.

She has less and less control of her feet, has gone from the quad cane to a walker now.

I will pray for Beth tonight Janet.

Love Ruthie

I'm so happy about this news, Janet.  Praise the Lord!  Thanks for telling us.

Janet:  What a load lifted!  Prayers of thanksgiving!  Carol

Praise God, the tests showed nothing abnormal in Beth's esophagus or colon.  Some irritation in her stomach, so they took a biopsy, but it will only mean taking a course of antibiotics, most likely.  Another big relief!

Thanks for your prayers, Pat, Ruthie, Carol and all the rest who have prayed for Beth.

Double reasons for praise, Janet.  Two pieces of good news.  

Oh, Janet!!  This good news!  It's been a long trip, but the Lord is so faithful.  This makes me so happy for you, and for Beth.   Thank you, Papa God.  You are such a good Father.

Janet, how thankful we all are! Now, to concentrate on prayers for her health and well-being.

Obviously they've begun work on Leslie application - this week we received more forms to complete.

Ruth Ann

Janet, finally a positive week for Beth.  Praise God for his goodness and for providing friends to intercede when needed with the autorities and for the doctors who can determine where there is or isn't a problem.

Janet, we're still praying for Beth and your family as you deal with these long-term consequences of her illness.

As a mother with children with disabilities, I can certainly empathize with both the struggles Beth endures, but with the emotional pain for family members as they pray for strength, financial resources, and guidance as to how much to do and when to do it.

Ruth Ann

Ruth Ann, your post comes at a time when I most need to hear that someone out there is still praying for Beth.  Last night, I was feeling so sad, because I had taken Beth to a show at our Civic Center, and after walking through the show, she was dragging her feet so badly she barely made it back to the car.  Her back was also giving her a lot of pain.  So I couldn't help wondering how long she will be able to get around with a walker, and what next?

And of course, the emotional and financial drain continues, too.

There are several of us here on CP with daughters and sons with disabilities, and I know all of us appreciate prayers for our "kids."  Thank you so much.

Janet, you have expressed the situation very and be assured that I do remember Beth and you and your family in my prayers.  It is hard to understand why things like this happen to our loved ones.  Hopefully we can encourage and support each other in prayer in the months and years ahead.

It will be six weeks tomorrow since Beth got notice of her approval for disability, but no check yet.  She ran out of groceries entirely before saying anything; so I took her to the store and we bought some stuff, also put gas in her car.  She was driving with the warning light on.

We would appreciate your prayers that the check will come SOON.  Thanks so much.

Father you are Jehovah Jireh our provider, you already know Beth's needs. I pray that her check will come very soon. In Jesus Name amen.

Janet, perhaps another call to the Social Security Office would be in order to be sure everything is on track.  It seems they should be able to tell you exactly when the check would be issued.  Do hope the check arrives soon as I know she doesn't need this additional worry.  It is interesting to note that the people processing all of this paperwork are getting a regular paycheck!

You're right, Larry.  Beth did call the Dodge City office, and they said it is out of their hands and they have no idea when she can expect a check.  If it is too much longer, I will call the national number.  I just hate staying on the line so long, waiting for all the "if you want.........press....etc."

She got some groceries today from the Loaves and Fishes, our local food pantry that is run by the ministerial alliance.

Oh, Janet!  What a trying time for our poor Beth!  I will continue to pray.

Janet, I strongly suggest you or Beth write to your Congressman about this delay.  They will just forward such a letter to the Agency but I know from my own work experience in Washington, D.C. that Congressional correspondence always got prompt attention.  Even a call to the office of your Congressman might help. 

Janet:  So sorry to hear of all the delays and problems with Beth's check.  Good to know that she now has food in the pantry.  Hugs for Beth and prayers as well.  Carol

Thanks for your suggestion, Larry.  I will do that!  Can't hurt, right?  And since the friend in the Dodge City office has done all she can, and gotten the approval, such a letter will not cause any problems for her personally, will it?  After all her kind help and caring, I surely don't want to do anything to hurt her.

Thanks for all your prayers and caring.  This, too, shall pass.

Janet, I don't see how it could have any reflection on the friend in the Dodge City office.  She is no longer involved and has done her job.  While the Congressman's office probably won't do anything directly, agencies usually have very strict controls on Congressional Correspondence and when something is forwarded by their staff to an agency it is controlled and has to be responded to in a limited period of time.  I would think the SSA would prefer to write that the payment has now been made rather than to give excuses. 

Thanks, Larry!

Janet - How is Beth today?  Did her disability check arrive yet?

Judy, not good (see NEM) and no, no check yet.

Oh Father, I pray for Beth and Janet.  I pray that You will move the right people to get that check to Beth.  I pray that very soon they'll be able to look back and see Your good Hand on all these things.  Oh Father, do these things through our Lord Jesus.

Father God, Thank You for all that has happened in order for Beth to be able to get her disability..but we are praying that the money will arrive soon for Beth's needs.  Thank You , too, for those who have been helping her as she awaits these funds.  I pray a special blessing for her tonight as only You can give...in Jesus name.amen

We have just arrived back home after a long day.  Beth saw her neurologist, who was stunned at the decline in her ability to walk.  He has ordered another MRI of base of skull and brain.  He knows there is a narrowing of the bone where the spinal cord passes through the base of the skull and thinks that is where the broblem is coming from, causing her decline.  He is optimistic that if that is the case, she can be helped.  If the MRI shows what he suspects it will, we will have to take her to either Lubbock or Dallas to a sub-specialist.  The MRI is scheduled for June 3.

The other doctor she saw today was her indocrinologist.  He thinks now that she does NOT have thyroid cancer.  He has conferred with a Neurofibromatosis specialist in Canada about Beth; and also sent her biopsy slides to a specialist at Baylor, and they bot agree that it is not cancerous.  So at least we had that good news today.

Thank you all for your prayers.  Both doctors also advised her to apply immediately for Medicare, since she will be losing her medical insurance in about a year, and cannot afford to be without coverage, considering her prognosis.

We love and appreciate all of you for caring and for praying.